Business Description 

Prader‐Willi Syndrome Association | USA was established in 1975 to unite parents, professionals, and other interested citizens to enhance the quality of life for those affected by Prader‐Willi syndrome (PWS). The organization plays a crucial role in the PWS community by providing a platform for shared experiences, advancing research, promoting education, advocating for patient rights, and offering comprehensive support to individuals with the syndrome and their families. 

With chapters across most states, PWSA | USA stands as the only national PWS supporith Prader-Willi syndrome t organization dedicated exclusively to assisting individuals w and their families at every stage of their journey. 

Services and Programs 

1. Support Services: 

• Emotional and informational support for families and individuals. 

• Assistance with accessing healthcare and educational resources. 

• Crisis intervention and management. 

1. Education and Awareness: 

• Educational resources for families, professionals, and the general public. 

• Workshops, webinars, and conferences on PWS. 

1. Advocacy: 

• Advocacy for policies and legislation that benefit individuals with PWS. 

• Collaboration with other organizations and stakeholders to promote awareness and research funding. 

1. Research: 

• Funding and supporting research initiatives aimed at understanding PWS. 

• Promoting and disseminating research findings to the community. 

1. Community Building: 

• Facilitating connections among families, caregivers, and individuals with PWS. 

• Organizing community events and support groups.