Business Description
Prader‐Willi Syndrome Association | USA was established in 1975 to unite parents, professionals, and other interested citizens to enhance the quality of life for those affected by Prader‐Willi syndrome (PWS). The organization plays a crucial role in the PWS community by providing a platform for shared experiences, advancing research, promoting education, advocating for patient rights, and offering comprehensive support to individuals with the syndrome and their families.
With chapters across most states, PWSA | USA stands as the only national PWS supporith Prader-Willi syndrome t organization dedicated exclusively to assisting individuals w and their families at every stage of their journey.
Services and Programs
- Support Services:
- Emotional and informational support for families and individuals.
- Assistance with accessing healthcare and educational resources.
- Crisis intervention and management.
- Education and Awareness:
- Educational resources for families, professionals, and the general public.
- Workshops, webinars, and conferences on PWS.
- Advocacy:
- Advocacy for policies and legislation that benefit individuals with PWS.
- Collaboration with other organizations and stakeholders to promote awareness and research funding.
- Research:
- Funding and supporting research initiatives aimed at understanding PWS.
- Promoting and disseminating research findings to the community.
- Community Building:
- Facilitating connections among families, caregivers, and individuals with PWS.
- Organizing community events and support groups.
